HEEYY future husband! How are you feeling!?…Me, I’m feeling smooth. It’s Friday, I didn’t just get paid, I’m not party hunting or drinking but the bass on this Mary J Blige song is bumping and my boo-tay is shaking just a little. With everything going on in the world, I feel its important to sing and dance everyday. It keeps me grounded and helps me decompress. My emotions have been on one millionlately…Well my emotions have been on one million since I was a little girl but that’s a different story for another day.…
Currently I live with my son and our G.G.C.( Golden Girl Crew) which is my mom and grandma who has dementia. My grandma has been living with us for almost 8 years and has been declining little by little since moving with us. My mom and I feel like she’s been declining at a more rapid rate this year and it’s getting more difficult to deal with her. This morning around 8:30, I heard my grandma’s walker coming up the hallway. I assumed she was going to the bathroom but she was headed toward the front door. We have a step down into our house in the living room, Thank YAHWEH we do because my grandma would have left. When I approached her she looked scared, frazzled and didn’t recognize me. I asked her what was wrong and she said I need you to call the police they’re trying to kill me. Apparently, she had a nightmare and it took a while to calm her down. Within the last couple of months she’s been asking my mom if she’s dying and some days when she’s frustrated she says I wish GOD would just take me. I feel bad for my grandma. There are days when I wish YAHWEH would call her home because it seems like she’s suffering.
So, after I did my part to calm my grandma down, I had to get ready for my son’s doctor appointment. I am loving the tell-a-med virtual appointments. He sees a few specialist and their offices are almost 2 hours away from where we live. I dread going up there but covid has lessened my burden on that end some what. His appointment went very well and we got a new neurologist which is something I’ve been talking to YAHWEH about. We were suppose to drive to the office in September but the nurse called and offered me a virtual visit instead. CAN I GET A AMEN AND HALLELUJAH!! His doc was asking me about school and I strongly dislike talking about school because of what we experienced last year. I had to withdraw him from school because I suspect he was neglected and abused. 2019 was a traumatic year for us but we made it through. Thanks to the Holy Trinity. Now that’s it time to go back to school my son wants to go back but he’s not keeping a mask on all day and I refuse to put him back into the school district he was previously in. So I don’t know what this school year is going to be like!???
After the appointment, my son and I watch some episodes from Shark week, washed the car and maxed and relaxed for the rest of the day. We had a great day! I hope you had a great day!! I also hope you are using the quarantine time to evaluate and upgrade your self. I’ve learned a lot about myself during this season. YAHWEH has been teaching me about myself and lots of other things. I’ve yearned to be a wife since I was a little girl but rejected the idea of marriage after things went south with my son’s father. However, over the past few years YAHWEH has been changing my perspective about marriage. Biblical marriage is completely different from worldly marriage. Just like biblical love is different from worldly love. I can’t get down with the LOVE IS LOVE narrative. I want Biblical Marriage, Biblical Love and a Biblical Family. Genesis 2:21-24 is one of my favorite scriptures. So like I said I hope you had a great day. I hope that you are safe wherever you are. I pray you are strengthening your intimate one-on-one relationship with the HOLY TRINITY. TTYL -Dom-
Soon, I want Jaden to be healthy and happy. I want jay and I to face our fears about school and anything else that brings us anxiety or distress. I want my son to be in an educational environment where he is thriving not just surviving. I want him to be in an environment where educators, mentors and protectors’ dwell. I want Jaden to be around his peers so that he can establish positive and lasting friendships. I want him to be in an educational environment that promotes kindness, compassion, and love. I want his educational environment to encourage his curiosities so, long as they are school appropriate. I want his educators, mentors and protectors to discipline fairly, compassionately and most of all keep me abreast to what is happening to my son while he is in school. WE want to trust EVERYONE that is on school premises! Teamwork makes the dream-work!!
My son used to love
school and I want him to fall in love with school again! I loved school and
still do; I would love a master’s degree, but our education system is
disgusting. People who are narrow minded and not really invested in our Education
are in control of our future. Their ignorance and lack of leadership discourages
me from getting my Masters. Plus, higher Education is expensive A.S.F. and if I’m
going to invest in myself, my future,
I want to be able to choose all my classes and not be limited to certain classes.
There were plenty of communications that I wanted to take but couldn’t because
I had to take other classes I wasn’t interested in. I do agree a student should
be well rounded in different areas, but WE should get to choose what we take. I have a bachelor’s degree in communications
and I also have an associate in medical assisting. Two different majors but
together they have been changing my life.
was headed into my junior year of high school when I got pregnant with my son.
Before I got pregnant, I loved school and was excited about the educational
path I was going to take. Everything that I was exposed to in kindergarten,
elementary and middle school helped prepared me for my high school experiences.
Except, getting pregnant that is. I had the
privilege of taken classes in high school that helped me release my creative
gene and communication was a major where I could release my creative genius. When
my son was diagnosed, I stopped my bachelor’s degree and pursued medical assisting.
I wanted to do massage therapy, but a great counselor listened to my story and
suggest I take up medical assisting, as it would make me more well-rounded to
deal with doctors. My instincts
constantly reminded me to not let doctors’ experiment with Jaden. Yes, there
will be trial and error but certain things we are not down for, I don’t care
what the statistics are.
My son was 2 when he was diagnosed with a rare
chromosomal disorder called MECP2 Duplication Syndrome. MECP2 has many symptoms
but my son suffers from epilepsy, hypotonia, sleep apnea, reoccurring constipation,
is more susceptible to respiratory infections, and is globally delayed. On May
31, 2019 Jaden went in for what should have been a routine MRI, but it turned
into a nightmare. He never woke up from the anesthesia and ended up in ICU for nine
days. Seven of those days he was hooked up to a ventilator and on an ass load
of pharmaceuticals. He spent a total of 14 days in Children’s Hospital of Philadelphia.
During this hospital stay I also found out his aortic root is moderate to severely
enlarged. Jaden is currently on restricted activity level. This life changing
event rolled up almost 4 months after I had to pull Jaden out of Atlantic County
Special Services School which is in Mays Landing, NJ.
On January 18 and February 14, 2019 my son was neglected and abused on school premises.
On January 18 he had a bloody nose and none of the faculty could explain why
there was dry and wet blood inside and outside his nose.
On February 14, the nurse and his teacher said he was playing on the floor and that’s
when they noticed a scrape under his nose and what looked like a chapped lip.
In my son’s IEP, Individualized Education Program, it states my son is to have a
one to one personal aide 360 minutes daily. Where was his personal aide when
these incidents happened? Why wasn’t an incident report filed? Why wasn’t I
contacted January 18th? The nurse called me February 14th
but that’s only because I complained about not being contact about the January
18th incident. I filed a
complaint with the resource officer stationed to ACSSSD, but he didn’t find any
foul play. I asked him for a copy of the report, and he said no problem. However,
when I requested the report from Hamilton township, they denied my request. I
filed a complaint with the Department of Child Protective Agency and their
report was inconclusive. I also
requested my son’s school records from Atlantic County Special Services School
and Hamilton Township school district, neither institution has provided me with
it feels AMAZING writing about how challenging 2019 has been. My biggest fears
have manifested, and it is now time for healing. My son and I are fearful to go
back to school and we both have PTSD from everything that has happened thus far
but the one thing that has kept us going is GOD. We must ask GOD daily, to help
us to forgive Atlantic County Special Services School and Hamilton township for
their negligence, abuse, lack of response and lack of compassion. I pray that all
parties involved have repented or choose a path that will bring them closer to GOD.
All parties involved should be grateful that Jesus and GOD reached me before I
could reach them. On September 10, 2019, I received a letter from Marylynn
Stecher who the supervisor of Special Education and Child Study Teams. Ms.
Stecher wanted to remind me that the Hamilton Township School District shall
remain ready and willing to provide my son with a free and appropriate
education. I think its adorable that the township wants to provide my son an education
but wont even give me my son’s educational record nor will they give me the
truth as to what happened to him while he was at school January 18th
and February 14th.
My son and I will find success in our educational environments. Educational environments where we will be safe, protected, nurtured and thirsty for knowledge. Jaden used to love school but has become timid about his educational future. I could live without a master’s degree, but my son was in 6th grade when the BS happened at Atlantic County Special Services School. He still has a great deal of primary education to gain. One of the reasons I loved school was because of the educators, counselors, faculty and staff that worked in the environment. I was blessed with some phenomenal people who nurtured, motivated, protected and educated me. I want my son to feel safe when he’s at school. I want him to have all the same educational opportunities I did. DAMN THE SPECIAL NEEDS, DAMN HIS RACE, DAMN ALL THOSE STEREOTYPES THAT EXIST IN THIS 3D WORLD!! This world and societies mind set is narrow minded and that is part of the reason our EDUCATIONAL system is DISCOMBOBULATED!
My name is
Dominique Soverall and I am the mother of Jaden Deshaun Soverall. Jaden was born
in Virginia May 11th, 2007, 6 pounds and 9 ounces. Jaden passed all
his newborn screenings and we were sent home promptly. Jaden was a joyful baby
who was making milestones at his own pace. During his 15-month checkup, his
pediatrician recommended we seek intervention because Jaden had not met most of
the 15-month milestones. That appointment was the beginning of a journey that
has changed our lives forever. When Jaden was 2, he was diagnosed with a mild
but rare chromosomal disorder called MECP2 duplication syndrome. There are many
symptoms associated with MECP2, but Jaden’s symptoms are epilepsy, hypotonia, acid
reflux, and global delays.
Continuing, one of
the reasons we moved was because the doctors were struggling to control Jaden’s
epilepsy. In May 2014, he fell terribly ill, spent 48 hours in the PICU and was
in the hospital another four days. The joyful boy that I had seen make
progressive progress despite his challenges was gone and a different child came
home with me in May of 2014. I
diligently began searching for doctors that could control his seizures so my
joyful baby would come back. My search led me to the Children’s Hospital of Philadelphia,
and we began the moving process. After two years of continuous road trips to
the tri-state area, we settled in New Jersey march of 2016. Our transition to
NJ was not easy, as Jaden has an extensive medical history and leaving our
school family in Virginia was heartbreaking.
Furthermore, I am a
product of the Newport News public school system. While I was in school, I was
challenged with teachers who were prejudice and students who teased me because
I was overweight. Despite those things, I persevered and now have 2 college
degrees. My son began his educational journey in the Newport News Public School
system at age 3. Pre-K through 3rd grade was amazing for my son. He
was in educational environments where he thrived and was constantly supported
by teachers, aides and his class mates.
Jaden has missed a great deal of school due to the medical challenges he
faces. Whenever he missed school or fell ill, his teachers and class mates would
always check on him. To this day I still receive emails or text from his past
educators asking me how Jaden is doing. Jaden had the pleasure of having my
elementary principal as his elementary principal and the security team that
worked at my high school as his security team in elementary school. Knowing
that Jaden was around familiars gave me great comfort! Even though Jaden
thrived in his educational environments, there was never enough resources
available to assist teachers, parents and students. Newport News persistently
cut budgets and the special needs children were the first to feel the effects.
Jaden also attended a before and after school program adapted for special needs
children and adults but because of poor management and budget cuts that program
was scratched for the special needs’ community. Therefore, moving to New Jersey
was exciting and I was hopeful because medically and educationally Jaden would
have more opportunities.
Once we moved in March 2016, I immediately began the process of
enrolling my son in school. One thing that impressed me right away was the
options of schooling. I was presented with 2 schools that would best
accommodate my son and his special needs. The choices were HESS school in a
self-contained classroom in a regular elementary school, which was what he had
in Virginia or he could go to Atlantic County Special Services. Atlantic County
Special Services was a school with an all special needs population and more
staff that could provide additional support such as physical, occupational and
speech therapy. I was also told that ACSSD would be better equipped to handle
his medical needs. By April of 2016 my son was enrolled in Atlantic County
Special Services and began class before the end of the month.
Fawn Butcher was Jaden’s
first school case manager and she was very welcoming and tried to accommodate
all our needs and concerns. Jaden also qualified for a 1 on 1 aide to assist
him throughout the school day which was something not offered to us by the
Newport News School System. Jaden entered Atlantic County Special Services at
the end of 3rd grade which was the 2015-2016 school year. He was
placed in Amy Sykes class and the first experiences were wonderful at the
school! My son was excited about ACSSD and his new opportunities, teacher and
classmates. However, Jaden’s excitement
soon faded when he returned to school for 4th grade during the
2016-2017 school year. He was assigned to Gail Breeds class and one day when I
went to pick Jaden up, I walked down to the class and observed his aide, Nikki,
hold Jaden by his wrist when assisting him back to his chair. I also noticed
that the class was a lower functioning class which was not like Mrs. Sykes
class. I was very uncomfortable with the
way Nikki was handling my son and wanted my son in a class where he would be
challenged by his peers, like in Mrs. Sykes class. I request that Jaden be
moved to a class like Mrs. Sykes class or a class where my son would be
Without delay, Jaden was removed from that class, along with
Nikki the personal aide, and was placed in a higher functioning class. Jaden
was moved to Devonee Fatcher’s class where he was rejoined with some of the classmates,
he met in Mrs. Sykes class. Jaden’s excitement for school had come back and he
also received an aide, Aliyah Brown, who seemed like she would be a great aide.
Towards the end of 2016, concerns were brought up that Jaden was having
mobility issues. One day I had the pleasure of walking him to class and because
Jaden was not having mobility issues at home, I wanted to see how he was moving
around in school. I walked Jaden into the classroom and spoke to everyone and
one of the class aides, not to be confused with Aliyah brown, told me that
Jaden displayed “Parkinson like Symptoms.” I was confused as to what the class
room aide was referring to and asked why no one had notified me about that
observation. The actions that followed were that I was to be notified if Jaden
displayed any “Parkinson like Symptoms” and I wanted all of Jaden’s seizure
activity to be documented.
During the 2017-2018 school year, Jaden was in Kate Peckus’s
class and Aliyah Brown, who was still Jaden’s aide, told me that she was
pregnant. Aliyah was in her first trimester when she told me and planned to
work all the way through her pregnancy. Since Aliyah was going to work her
whole pregnancy, I thought I would notify Jaden’s principal Brian Kern and
Jaden’s case managers Sue Frambus and Jessica Crawford, to see if we could work
on finding a replacement aide. When I asked for Nikki to be removed, I had also
asked, if possible, could Jaden be placed with a male aide. According the
ACSSD, male aides are hard to find, but they would try to find one. That search
was taking too long and that’s how Jaden ended up with Aliyah. Because Aliyah notified
me in her first trimester, I thought that would be a fair amount of time to
find a replacement aide. However, no aide was found and when Aliyah went out to
bring life into the world Jaden had a series of regular substitute aides. One
of the substitute aides, Najiba, told me that some teachers and other staff
members had witness Aliyah being negligent on her responsibilities to Jaden and
was happy to share that information with Najiba. I was never notified by
Jaden’s teacher or any staff member from ACSSD, other than Najiba, with claims
of negligence by Aliyah Brown.
Eventually, Jaden was blessed with a permanent aide, Artaya
Graham. Artaya started with Jaden right before the end of the 2017-2018 school
year. She was one of the substitute aides and when I met her, I knew I wanted
her with my son. My mom Renee Soverall, called Insight Workforce Solutions,
which is the company used to hire aides for ACSSD, and requested Artaya be
assigned to Jaden. Artaya just left ACCSD January 16. 2019 and when she told me
she was leaving I cried because I knew things were going to change and they
rapidly changed! Not even 48 hours after she left, on January 18, 2019, when I
picked Jaden up, I noticed there was dry blood under his left nostril. He was
with an aide named Thelma on that day and when she brought him to me, she said
he had a good day. I immediately took Jaden to the bathroom and upon further
observation noticed there was more blood and dry blood inside Jaden’s left
nostril. I cleaned my son’s nose and went out to the security desk and asked
him to call down to the class. For the 2017-2018 school year Jaden was placed
in Cyndi Palubmo’s class and on January 18, Cyndi was out of town and I spoke
with the substitute teacher. I asked the substitute teacher a series of
questions trying to find out why there was blood underneath my son’s nose. The
substitute teacher told me there were 4 adults in the room and none of them saw
anything, he had a good day. I was not happy with that response and immediately
called Jessica Crawford who is Jaden’s district case manager.
Just recently on
February 14, 2019, I received a phone call from nurse Yvonne Tracy, stating she
had just seen Jaden in the classroom. Nurse Yvonne told me that when she first
approached Jaden, he seemed shocked and looked as if he did not recognize her.
She said that she observed a cut underneath his left nostril and his bottom lip
looked chapped. She also told me that he had a temperature of 99.1 but that he
was fine. Nurse Yvonne called me at 1:14pm and I was at the school before
1:30pm. I did not like what I heard on the phone and knew my son was not okay.
Cyndi, Jaden’s teacher, brought him to me and explained to me that Jaden was
playing on the floor with Legos and that’s when they noticed Jaden’s nose and
analysis, I am furious and extremely disappointed in Atlantic County Special
Services School. I moved to New Jersey to give my son a better quality of life.
I have fought tooth and nail, for 11 years, to keep my son ALIVE and in good health.
I do not see my son’s disorder as a disability, I see it as a power, a
strength, something that can be an ability more than a disability. It takes a
village to raise a child and we had a wonderful educational village in
Virginia. Every teacher that crossed paths with my son educated, nurtured and
protected him. Children should always feel safe and wanted in their educational
environment and be able to trust the adults around them. During our time with
ACSSD, I have consistently complained, at IEP meetings, about the lack of
communication in that building. I have been misled by one of Jaden’s speech
therapist, with the volunteered offer of flash cards on two occasions but no
flash cards were ever made. My mom has
overheard one of Jaden’s previous class aides call Jaden a “BRAT” because he
would not engage with her. I am tired of dealing with ACSSD over finding a full-time
aide especially when on one occasion there was adequate time to find a replacement.
Having a personal aide 3 days out of the week is unacceptable when It is
written in Jaden’s IEP that he is to have a personal individual aide for 360
minutes daily. I’ve had to cancel bus services with Shepard Bus Company because
drivers and aides were not properly trained to deal with special needs
children. There was also an issue with the length of time it took for Jaden to
receive his helmet in this school year. Not one person from the physical
therapy department or the school kept me abreast as to what the delay was. I
had to become Nancy Drew and inquire what the delay was. Once again, the lack
of communication at that school is out of control. I have had enough of the bs
with Atlantic County Special Services School! I will never ever, allow anyone
else at that school to have access to my son, Jaden Soverall. I will not allow
another person at Atlantic County Special Services, to smile in my face, make
false promises and lie to me about what’s going on with my son. The atmosphere
that you have presented to me and my son, no longer fits the educational vision
that I have for Jaden. I feel like Jaden’s civil rights
have been violated and that is not okay! I asked the supposed educators and
teaching staff what happened to my son while he was on school premises and was
told he had a good day. That does not sit right with me when Jaden has scrapes
and unexplained blood leaking from his nose, and nobody sees anything. You have denied me my parental rights and have lost my
respect on all levels!!
September of 2016 a letter was sent home to all students from Jennifer Cruickshank,
the Affirmative Action Officer, on a Non- Discrimination Policy that states the
have a right to be safe in our school. This means we will not hit you, kick
you, push you or hurt you in any way.
have the right to be respected and treated with compassion in our school. We
will not laugh at you or hurt your feelings.
feel you have been treated unfairly, talk to your teacher. If they can’t help
you speak to your principal about your problem. We can all get along well and
treat each other fairly.
is more to the Non-Discrimination Policy, but these specific policies really
warm my heart and your services are no longer needed.