Dear Near Future…
Soon, I want Jaden to be healthy and happy. I want jay and I to face our fears about school and anything else that brings us anxiety or distress. I want my son to be in an educational environment where he is thriving not just surviving. I want him to be in an environment where educators, mentors and protectors’ dwell.
I want Jaden to be around his peers so that he can establish positive and lasting friendships. I want him to be in an educational environment that promotes kindness, compassion, and love.
I want his educational environment to encourage his curiosities so, long as they are school appropriate. I want his educators, mentors and protectors to discipline fairly, compassionately and most of all keep me abreast to what is happening to my son while he is in school. WE want to trust EVERYONE that is on school premises! Teamwork makes the dream-work!!
My son used to love
school and I want him to fall in love with school again! I loved school and
still do; I would love a master’s degree, but our education system is
disgusting. People who are narrow minded and not really invested in our Education
are in control of our future. Their ignorance and lack of leadership discourages
me from getting my Masters. Plus, higher Education is expensive A.S.F. and if I’m
going to invest in myself, my future,
I want to be able to choose all my classes and not be limited to certain classes. There were plenty of communications that I wanted to take but couldn’t because I had to take other classes I wasn’t interested in. I do agree a student should be well rounded in different areas, but WE should get to choose what we take. I have a bachelor’s degree in communications and I also have an associate in medical assisting. Two different majors but together they have been changing my life.
I was headed into my junior year of high school when I got pregnant with my son. Before I got pregnant, I loved school and was excited about the educational path I was going to take. Everything that I was exposed to in kindergarten, elementary and middle school helped prepared me for my high school experiences. Except, getting pregnant that is. I had the privilege of taken classes in high school that helped me release my creative gene and communication was a major where I could release my creative genius. When my son was diagnosed, I stopped my bachelor’s degree and pursued medical assisting. I wanted to do massage therapy, but a great counselor listened to my story and suggest I take up medical assisting, as it would make me more well-rounded to deal with doctors. My instincts constantly reminded me to not let doctors’ experiment with Jaden. Yes, there will be trial and error but certain things we are not down for, I don’t care what the statistics are.
My son was 2 when he was diagnosed with a rare chromosomal disorder called MECP2 Duplication Syndrome. MECP2 has many symptoms but my son suffers from epilepsy, hypotonia, sleep apnea, reoccurring constipation, is more susceptible to respiratory infections, and is globally delayed. On May 31, 2019 Jaden went in for what should have been a routine MRI, but it turned into a nightmare. He never woke up from the anesthesia and ended up in ICU for nine days. Seven of those days he was hooked up to a ventilator and on an ass load of pharmaceuticals. He spent a total of 14 days in Children’s Hospital of Philadelphia. During this hospital stay I also found out his aortic root is moderate to severely enlarged. Jaden is currently on restricted activity level. This life changing event rolled up almost 4 months after I had to pull Jaden out of Atlantic County Special Services School which is in Mays Landing, NJ.
On January 18 and February 14, 2019 my son was neglected and abused on school premises. On January 18 he had a bloody nose and none of the faculty could explain why there was dry and wet blood inside and outside his nose.
On February 14, the nurse and his teacher said he was playing on the floor and that’s when they noticed a scrape under his nose and what looked like a chapped lip. In my son’s IEP, Individualized Education Program, it states my son is to have a one to one personal aide 360 minutes daily. Where was his personal aide when these incidents happened? Why wasn’t an incident report filed? Why wasn’t I contacted January 18th? The nurse called me February 14th but that’s only because I complained about not being contact about the January 18th incident. I filed a complaint with the resource officer stationed to ACSSSD, but he didn’t find any foul play. I asked him for a copy of the report, and he said no problem. However, when I requested the report from Hamilton township, they denied my request. I filed a complaint with the Department of Child Protective Agency and their report was inconclusive. I also requested my son’s school records from Atlantic County Special Services School and Hamilton Township school district, neither institution has provided me with those documents.
Continuing, it feels AMAZING writing about how challenging 2019 has been. My biggest fears have manifested, and it is now time for healing. My son and I are fearful to go back to school and we both have PTSD from everything that has happened thus far but the one thing that has kept us going is GOD. We must ask GOD daily, to help us to forgive Atlantic County Special Services School and Hamilton township for their negligence, abuse, lack of response and lack of compassion. I pray that all parties involved have repented or choose a path that will bring them closer to GOD. All parties involved should be grateful that Jesus and GOD reached me before I could reach them. On September 10, 2019, I received a letter from Marylynn Stecher who the supervisor of Special Education and Child Study Teams. Ms. Stecher wanted to remind me that the Hamilton Township School District shall remain ready and willing to provide my son with a free and appropriate education. I think its adorable that the township wants to provide my son an education but wont even give me my son’s educational record nor will they give me the truth as to what happened to him while he was at school January 18th and February 14th.
Dear near future,
My son and I will find success in our educational environments. Educational environments where we will be safe, protected, nurtured and thirsty for knowledge. Jaden used to love school but has become timid about his educational future. I could live without a master’s degree, but my son was in 6th grade when the BS happened at Atlantic County Special Services School. He still has a great deal of primary education to gain. One of the reasons I loved school was because of the educators, counselors, faculty and staff that worked in the environment. I was blessed with some phenomenal people who nurtured, motivated, protected and educated me. I want my son to feel safe when he’s at school. I want him to have all the same educational opportunities I did. DAMN THE SPECIAL NEEDS, DAMN HIS RACE, DAMN ALL THOSE STEREOTYPES THAT EXIST IN THIS 3D WORLD!! This world and societies mind set is narrow minded and that is part of the reason our EDUCATIONAL system is DISCOMBOBULATED!
Today I’m feeling Fantastic! I got to sleep in late as my usual wakeup time is between 6 and 8am. I had an awesome night last night and didn’t go to bed until 4 am. My mom and I had a “Tower Moment”, where we both were open and honest with each other. We have been “beefing” on and off for the past 6 years and within this last year and a half, things have gotten toxic and nasty. The conversation we had last night was about the events and emotions that have led to those negative moments. A huge burden was lifted off me by having that conversation, I felt so good that I couldn’t go to sleep which stimulated my creative juices.
In my opinion, “Tower Moments” are moments that help you release, they help you gain perspective, they give you clarity, they help you grow, and they might also reveal whose truly on your team. I had been praying for this moment for a while and my prayers were finally answered. I cannot emphasize how much God has been doing in my life. I’ve never felt closer to God and Jesus at any other point in my life. I’ve always believed in God and Jesus but the last 3 years, my relationship with those beautiful men has strengthen significantly. When I tell you, they been showing up and showing out… GOD IS SO AMAZING!! I will never live my life with out the Father, the Son and the Holy Spirit.
Since I’ve been strengthening my connection with the Father, the Son and the Holy Spirit, I’ve been noticing things like repeating numbers, 1111, 222, 333 etc. and my ancestors have been communicating more along with the animal/insect community. I’ve been dreaming about spiders and physically seeing them everywhere I go. Sometimes I don’t even see the spider, I just see the web. I must admit spiders put in work when they weave their webs. Currently I have a friend named Nicholas, he’s a black and yellow garden spider that has moved into my mom’s gardening basket. The basket is located next to the trash cans so, every time I take out the trash I speak to Nicholas. He creates a beautiful web that has a silk zig zag in the middle, it’s super pretty. When black and yellow garden spiders spin their web, they also anchor the web in 5 different areas. Nicholas likes to anchor his web on my mom’s car sometimes if she backs up far enough. I told him he’s got to cut that out because when my son comes flying out the houses, he’s going to tear down your web. However, Nicholas doesn’t listen, he just does him and I’m not mad at that. This morning when took the trash out, we apparently got some rain last night and it destroyed his web. I get sad when his web gets destroyed. This is the seconded time the rain has destroyed his web, but he always rebuilds and it’s even more beautiful then it was before. Spiders used to creep me out, they still do but I have a new appreciation for the craftmanship it takes for Nicholas and his cousins to spin those delicate webs.
In my post about my 2019 lessons, I stated that my biggest fears had come to fruition. Now I’m also seeing animals and insects that creep me out. The events I’ve been experiencing and critters I’ve been seeing have been helping me to face my fears. There comes a time when you can no longer run from people, places or things that put fear in your heart, mind, body and soul. You must face those challenges and fears head on. Those fears or challenges have come about for a reason. EVERYTHING HAPPENS FOR A REASON! There are so many beautiful people, places and things on Earth. There’s a reason why Earth is the only planet that’s can sustain life as we know. The climate crisis is legit, I love having the freedom to take a walk, to go to the beach, and to have the opportunity to go outside and breath in the fresh prana. We should all fight like hell to save this beautiful planet. We need to find positive and constructive ways to push back against the ignorance, delusions and hatred that exist in this world, especially when it comes to the climate crisis. It’s a beautiful day where I live, and I hope it’s a beautiful day where you are. No matter what your situation may be, no matter how many people you have supporting what you do, so long as you have breath in your body you can change your circumstance. I sincerely hope everyone has a beautiful day and a productive week!!
Signed a spiritual being, having physical experience while falling in love with her true authentic self and the WORLDS that surround her….Nbetween 2 Worlds
- I love Animals especially dolphins, owls and tigers
- I Love to eat especially Soul and Italian food
- I Love music
- I like to sing
- I Like playing outside but Love playing outside in the rain
- I Love thunderstorms
- I Love Egypt
- I Love learning new things
- I Love school, kinda want a masters degree but the way our education system is set up 😫😢🥱
- I Love to swim
- I Love star gazing
- I Love being a mom
- I Love to shuffle cards
- I Love to sew
- I Love to do arts and crafts, I think creativity is one of my superpowers 💪🏽
- I Love making videos
- I love spending time with my family
- I like going on road trips
- I Love earth science
- Spiders creep me out but I am fascinated by how they spin their webs
- I Love writing in my journal especially when I can write at the beach & when I’m board I draw on myself
- I Love watching movies
- I’m afraid of the dark and the darkness that dwells within me
- I Love getting my nails done
- I enjoy helping people
- I like playing video games
- I Love numbers.. I hated math in school but now I think I’m crushing on math😍
- I like doing science experiments
- I love the fall..hoodies, leather jackets and boots complete me 💃🏽
- I Love spending time alone, I often need it to recharge…being around a lot of people or large crowds drains my energy 💩😫😴😃😎
Shout Out to Disney for inspiring me to do this list 💜💙💚💛🧡
- I Love shrimp
- I Love essential oils
- I Love Spider man
- I Love pillows
- I Love playing peek-a-boo
- I Love getting and giving kisses when I’m in the mood
- I like hats
- I like playing on the computer
- I Love reading books
- I like watching TV
- I like playing in the park
- I Love slushies 🍧
- I Love colorful things especially the colour RED 💯
- I Love musical instruments
- I like doing arts and crafts
- I like trains
- I love animals but not in real-time except cats, dogs or horses
- I Love to dance
- I Love eating food especially desert
- I Love going on road trips🚗✈
- I Love staying in hotels
- I Love birthday celebrations🎈🎁
- I Love roller coasters
- I like boats
- I love sports
- I love playing in the water, on rainy days I like splashing in the puddles
- I like going to school
- I love Abraham Lincoln and Barack Obama…those are my presidents 😎
- I like getting my hair cut
- I love going grocery store 🛒
To whom this may concern,
My name is Dominique Soverall and I am the mother of Jaden Deshaun Soverall. Jaden was born in Virginia May 11th, 2007, 6 pounds and 9 ounces. Jaden passed all his newborn screenings and we were sent home promptly. Jaden was a joyful baby who was making milestones at his own pace. During his 15-month checkup, his pediatrician recommended we seek intervention because Jaden had not met most of the 15-month milestones. That appointment was the beginning of a journey that has changed our lives forever. When Jaden was 2, he was diagnosed with a mild but rare chromosomal disorder called MECP2 duplication syndrome. There are many symptoms associated with MECP2, but Jaden’s symptoms are epilepsy, hypotonia, acid reflux, and global delays.
Continuing, one of the reasons we moved was because the doctors were struggling to control Jaden’s epilepsy. In May 2014, he fell terribly ill, spent 48 hours in the PICU and was in the hospital another four days. The joyful boy that I had seen make progressive progress despite his challenges was gone and a different child came home with me in May of 2014. I diligently began searching for doctors that could control his seizures so my joyful baby would come back. My search led me to the Children’s Hospital of Philadelphia, and we began the moving process. After two years of continuous road trips to the tri-state area, we settled in New Jersey march of 2016. Our transition to NJ was not easy, as Jaden has an extensive medical history and leaving our school family in Virginia was heartbreaking.
Furthermore, I am a product of the Newport News public school system. While I was in school, I was challenged with teachers who were prejudice and students who teased me because I was overweight. Despite those things, I persevered and now have 2 college degrees. My son began his educational journey in the Newport News Public School system at age 3. Pre-K through 3rd grade was amazing for my son. He was in educational environments where he thrived and was constantly supported by teachers, aides and his class mates. Jaden has missed a great deal of school due to the medical challenges he faces. Whenever he missed school or fell ill, his teachers and class mates would always check on him. To this day I still receive emails or text from his past educators asking me how Jaden is doing. Jaden had the pleasure of having my elementary principal as his elementary principal and the security team that worked at my high school as his security team in elementary school. Knowing that Jaden was around familiars gave me great comfort! Even though Jaden thrived in his educational environments, there was never enough resources available to assist teachers, parents and students. Newport News persistently cut budgets and the special needs children were the first to feel the effects. Jaden also attended a before and after school program adapted for special needs children and adults but because of poor management and budget cuts that program was scratched for the special needs’ community. Therefore, moving to New Jersey was exciting and I was hopeful because medically and educationally Jaden would have more opportunities.
Once we moved in March 2016, I immediately began the process of enrolling my son in school. One thing that impressed me right away was the options of schooling. I was presented with 2 schools that would best accommodate my son and his special needs. The choices were HESS school in a self-contained classroom in a regular elementary school, which was what he had in Virginia or he could go to Atlantic County Special Services. Atlantic County Special Services was a school with an all special needs population and more staff that could provide additional support such as physical, occupational and speech therapy. I was also told that ACSSD would be better equipped to handle his medical needs. By April of 2016 my son was enrolled in Atlantic County Special Services and began class before the end of the month.
Fawn Butcher was Jaden’s first school case manager and she was very welcoming and tried to accommodate all our needs and concerns. Jaden also qualified for a 1 on 1 aide to assist him throughout the school day which was something not offered to us by the Newport News School System. Jaden entered Atlantic County Special Services at the end of 3rd grade which was the 2015-2016 school year. He was placed in Amy Sykes class and the first experiences were wonderful at the school! My son was excited about ACSSD and his new opportunities, teacher and classmates. However, Jaden’s excitement soon faded when he returned to school for 4th grade during the 2016-2017 school year. He was assigned to Gail Breeds class and one day when I went to pick Jaden up, I walked down to the class and observed his aide, Nikki, hold Jaden by his wrist when assisting him back to his chair. I also noticed that the class was a lower functioning class which was not like Mrs. Sykes class. I was very uncomfortable with the way Nikki was handling my son and wanted my son in a class where he would be challenged by his peers, like in Mrs. Sykes class. I request that Jaden be moved to a class like Mrs. Sykes class or a class where my son would be challenge more.
Without delay, Jaden was removed from that class, along with Nikki the personal aide, and was placed in a higher functioning class. Jaden was moved to Devonee Fatcher’s class where he was rejoined with some of the classmates, he met in Mrs. Sykes class. Jaden’s excitement for school had come back and he also received an aide, Aliyah Brown, who seemed like she would be a great aide. Towards the end of 2016, concerns were brought up that Jaden was having mobility issues. One day I had the pleasure of walking him to class and because Jaden was not having mobility issues at home, I wanted to see how he was moving around in school. I walked Jaden into the classroom and spoke to everyone and one of the class aides, not to be confused with Aliyah brown, told me that Jaden displayed “Parkinson like Symptoms.” I was confused as to what the class room aide was referring to and asked why no one had notified me about that observation. The actions that followed were that I was to be notified if Jaden displayed any “Parkinson like Symptoms” and I wanted all of Jaden’s seizure activity to be documented.
During the 2017-2018 school year, Jaden was in Kate Peckus’s class and Aliyah Brown, who was still Jaden’s aide, told me that she was pregnant. Aliyah was in her first trimester when she told me and planned to work all the way through her pregnancy. Since Aliyah was going to work her whole pregnancy, I thought I would notify Jaden’s principal Brian Kern and Jaden’s case managers Sue Frambus and Jessica Crawford, to see if we could work on finding a replacement aide. When I asked for Nikki to be removed, I had also asked, if possible, could Jaden be placed with a male aide. According the ACSSD, male aides are hard to find, but they would try to find one. That search was taking too long and that’s how Jaden ended up with Aliyah. Because Aliyah notified me in her first trimester, I thought that would be a fair amount of time to find a replacement aide. However, no aide was found and when Aliyah went out to bring life into the world Jaden had a series of regular substitute aides. One of the substitute aides, Najiba, told me that some teachers and other staff members had witness Aliyah being negligent on her responsibilities to Jaden and was happy to share that information with Najiba. I was never notified by Jaden’s teacher or any staff member from ACSSD, other than Najiba, with claims of negligence by Aliyah Brown.
Eventually, Jaden was blessed with a permanent aide, Artaya Graham. Artaya started with Jaden right before the end of the 2017-2018 school year. She was one of the substitute aides and when I met her, I knew I wanted her with my son. My mom Renee Soverall, called Insight Workforce Solutions, which is the company used to hire aides for ACSSD, and requested Artaya be assigned to Jaden. Artaya just left ACCSD January 16. 2019 and when she told me she was leaving I cried because I knew things were going to change and they rapidly changed! Not even 48 hours after she left, on January 18, 2019, when I picked Jaden up, I noticed there was dry blood under his left nostril. He was with an aide named Thelma on that day and when she brought him to me, she said he had a good day. I immediately took Jaden to the bathroom and upon further observation noticed there was more blood and dry blood inside Jaden’s left nostril. I cleaned my son’s nose and went out to the security desk and asked him to call down to the class. For the 2017-2018 school year Jaden was placed in Cyndi Palubmo’s class and on January 18, Cyndi was out of town and I spoke with the substitute teacher. I asked the substitute teacher a series of questions trying to find out why there was blood underneath my son’s nose. The substitute teacher told me there were 4 adults in the room and none of them saw anything, he had a good day. I was not happy with that response and immediately called Jessica Crawford who is Jaden’s district case manager.
Just recently on February 14, 2019, I received a phone call from nurse Yvonne Tracy, stating she had just seen Jaden in the classroom. Nurse Yvonne told me that when she first approached Jaden, he seemed shocked and looked as if he did not recognize her. She said that she observed a cut underneath his left nostril and his bottom lip looked chapped. She also told me that he had a temperature of 99.1 but that he was fine. Nurse Yvonne called me at 1:14pm and I was at the school before 1:30pm. I did not like what I heard on the phone and knew my son was not okay. Cyndi, Jaden’s teacher, brought him to me and explained to me that Jaden was playing on the floor with Legos and that’s when they noticed Jaden’s nose and bottom lip.
In final analysis, I am furious and extremely disappointed in Atlantic County Special Services School. I moved to New Jersey to give my son a better quality of life. I have fought tooth and nail, for 11 years, to keep my son ALIVE and in good health. I do not see my son’s disorder as a disability, I see it as a power, a strength, something that can be an ability more than a disability. It takes a village to raise a child and we had a wonderful educational village in Virginia. Every teacher that crossed paths with my son educated, nurtured and protected him. Children should always feel safe and wanted in their educational environment and be able to trust the adults around them. During our time with ACSSD, I have consistently complained, at IEP meetings, about the lack of communication in that building. I have been misled by one of Jaden’s speech therapist, with the volunteered offer of flash cards on two occasions but no flash cards were ever made. My mom has overheard one of Jaden’s previous class aides call Jaden a “BRAT” because he would not engage with her. I am tired of dealing with ACSSD over finding a full-time aide especially when on one occasion there was adequate time to find a replacement. Having a personal aide 3 days out of the week is unacceptable when It is written in Jaden’s IEP that he is to have a personal individual aide for 360 minutes daily. I’ve had to cancel bus services with Shepard Bus Company because drivers and aides were not properly trained to deal with special needs children. There was also an issue with the length of time it took for Jaden to receive his helmet in this school year. Not one person from the physical therapy department or the school kept me abreast as to what the delay was. I had to become Nancy Drew and inquire what the delay was. Once again, the lack of communication at that school is out of control. I have had enough of the bs with Atlantic County Special Services School! I will never ever, allow anyone else at that school to have access to my son, Jaden Soverall. I will not allow another person at Atlantic County Special Services, to smile in my face, make false promises and lie to me about what’s going on with my son. The atmosphere that you have presented to me and my son, no longer fits the educational vision that I have for Jaden. I feel like Jaden’s civil rights have been violated and that is not okay! I asked the supposed educators and teaching staff what happened to my son while he was on school premises and was told he had a good day. That does not sit right with me when Jaden has scrapes and unexplained blood leaking from his nose, and nobody sees anything. You have denied me my parental rights and have lost my respect on all levels!!
Finally, In September of 2016 a letter was sent home to all students from Jennifer Cruickshank, the Affirmative Action Officer, on a Non- Discrimination Policy that states the following:
- You have a right to be safe in our school. This means we will not hit you, kick you, push you or hurt you in any way.
- You have the right to be respected and treated with compassion in our school. We will not laugh at you or hurt your feelings.
- If you feel you have been treated unfairly, talk to your teacher. If they can’t help you speak to your principal about your problem. We can all get along well and treat each other fairly.
There is more to the Non-Discrimination Policy, but these specific policies really warm my heart and your services are no longer needed.
Thank you for your time,
One of my favorite hobbies is writing and drawing in my journal. I love back to school sales because that’s when I stockpile my journals. Staples usually has composition notebooks on sale for 50 cents. I get enough notebooks to last me a whole year. #Winning
Lately, I’ve been carrying my journal with me everywhere, as I’ve been a cluster fuck of emotions. 2019 has been a complex year for me on all levels. I had to withdraw my special needs son from school because he was neglected and abused on school premises. I had to quit my job once my son was out of school, I had a death in the family that rocked me to the core and then my precious baby boy almost died. All those events happened within the first 6 months of 2019.
Valentine’s Day 2019 was my son’s last day of school, March 30th was last day of work, my loved one pasted in April and my son spent 2 weeks in Children’s Hospital of Philadelphia in June 2019. Unfavorable situations kept happening and I couldn’t understand why but, in a way, I knew 2019 was going to be a year of change. Nothing could have prepared me for the situations that happened but in hindsight these things happened for a reason. The common theme that seemed to be appearing was facing and conquering fears. I’ve always felt fearless on some levels but within the last 2 years I had become fearful to live my life. I was just existing instead of living. That was one of the reasons all my fears started coming to fruition.
We are halfway through the year and 2019 has taught me many things. Besides conquering my fears, I have also learned numerous lessons. These are the lessons that have helped me with the healing process:
- I believe in GOD more then I ever have before in my life. He has been showing up and showing out!!
- Faith and a positive attitude can influence people and things around you.
- Time waits for no one and all life is truly precious!
- Saying No is Okay! Cutting off people and vices that no longer suite you are Okay too. It hurts but I promise it’s worth it!!
- SELF LOVE & Self RESPECT ARE SO IMPORTANT
- Going through dark times is an important part of growth. Dark times show you what you’re made of. There is always light at the end of the tunnel, There is always light in the darkness and There is always light when you’re NBETWEEN 2 Worlds.
Thanks for joining me on my journey to self love & finding my voice!!